Record Details
Book cover

Beyond the pale : folklore, family, and the mystery of our hidden genes

Urquhart, Emily. (Author).

The story begins on St. Stephen's Day, 2010, in St. John's, NL, when the author gives birth to a baby girl named Sadie Jane who has a shock of snow-white hair. After three months of medical testing, Sadie is diagnosed with albinism, a rare genetic condition where pigment fails to form in the skin, hair and eyes. She is visually impaired and faces a lifetime indoors. A journalist and folklore scholar accustomed to processing the world through other people's stories, Emily is drawn to understanding her child's difference by researching the cultural beliefs associated with albinism worldwide.

Book  - 2015
362.19655 Urq
1 copy / 0 on hold

Available Copies by Location

Location
Stamford Available
  • ISBN: 1443423564
  • ISBN: 9781443423564
  • Physical Description 282 pages : illustrations (some colour)
  • Edition First edition.
  • Publisher Toronto : Harper Avenue, [2015]

Content descriptions

General Note:
Bibliography, etc. Note:
Includes bibliographical references and Internet addresses.
Immediate Source of Acquisition Note:
LSC 29.99

Additional Information

Syndetic Solutions - Summary for ISBN Number 1443423564
Beyond the Pale : Folklore, Family and the Mystery of Our Hidden Genes
Beyond the Pale : Folklore, Family and the Mystery of Our Hidden Genes
by Urquhart, Emily
Rate this title:
vote data
Click an element below to view details:

Summary

Beyond the Pale : Folklore, Family and the Mystery of Our Hidden Genes


Like any new mother, Emily is thrilled when her first child, a daughter, is born. The baby, Sadie, is healthy and stunningly beautiful, with snow white hair and fair skin. Even the doctors and nurses can't help a second look at this magical child. But soon a darker current begins to emerge--something is amiss. After three months of testing, Sadie is diagnosed with albinism, a rare genetic condition. Emily, a folklore scholar and an award-winning journalist, is accustomed to understanding and processing the world through stories. With Sadie at her side, Emily researches the cultural beliefs surrounding albinism and finds a curious history of outlandish tales of magic, and of good and evil reaching back through time, along with present-day atrocities. In some parts of the world, people with albinism are stalked; their condition is seen to bring luck and health as well as danger and death. Investigating the different reactions, in different cultures, to those with albinism, Emily begins to see her child as a connection between worlds. Part memoir, part cultural critique, and part genetic travelogue, Beyond the Pale is a brave, intimate investigation into the secret histories that each of us carries in our genes and an inspiring and beautiful memoir about parenting a child with a disability--and building a better future for that child.